Posts Tagged ‘Sanfilippo Syndrome’

Parents of pupil with childhood dementia say school super-supportive

Monday, December 4th, 2023
childhood dimentia

A pupil with a disease likened to childhood dementia is much loved at the “fantastic and welcoming” St Mary’s Catholic School in Rotorua , his mum says. The school as a whole is supporting Ollie Schimanski whose rare genetic metabolism disorder (Sanfilippo Syndrome) causes fatal brain damage, Ollie’s mother Charlotte Schimanski explains. There is no Read more